Path-Breaking Medical Researcher and Survivor of Rare, Fatal Disease to Keynote the NFAIS 2017 Annual Conference  


Penn’s Dr. David Fajgenbaum will share his riveting personal medical story that has led him to develop a groundbreaking research method (“flipping it on its head”) for disease prevention and treatment 

December 20, 2016, Annapolis, MD – Named by Forbes magazine as one of the top 30 young scientists changing the world, Dr. David Fajgenbaum, MD, MBA, MSc, FCPP, who is revolutionizing the way medical research is conducted, will deliver the Keynote Address at the National Federation of Advanced Information Service’s (NFAIS™) 59th Annual Conference, February 26-28, 2017 at Alexandria, VA’s Hilton Old Town. 

Dr. David Fajgenbaum, MD, MBA, MSc is an Assistant Professor of Medicine in Translational Medicine/Human Genetics and Associate Director of Patient Impact for the Penn Orphan Disease Center at the University of Pennsylvania. He is also the co-founder of the Castleman Disease Collaborative Network (CDCN) and a patient battling a rare and deadly disease – idiopathic multicentric Castleman disease – as a physician-researcher-entrepreneur-patient-advocate.

Between life-threatening relapses, Dr. Fajgenbaum has grown the CDCN into a model for international collaboration and published research that has changed the way Castleman disease is researched and treated. He is currently in his longest remission ever thanks to a precision treatment he identified through his research at Penn that had never been used before for Castleman disease. He also is PI of several clinical and translational research studies into etiology, pathogenesis, and precision medicines for Castleman disease.

Dr. Fajgenbaum has been recognized with the “Rare Champion of Hope: Science Award” by Global Genes, RareVoice Award for Federal Advocacy by EveryLife Foundation, along with the Forbes 30 Under 30 Healthcare list. He received an MBA from The Wharton School as the Kissick Scholar and Mandel Fellow, MD from the Perelman School of Medicine as a 21st Century Gamble Scholar, MSc from the University of Oxford as the 2007 Allbritton Scholar, and a BS from Georgetown University.

The NFAIS 2017 Annual Conference theme, "The Big Pivot: Re-Engineering Scholarly Communication," centers on how innovative technical developments are creating new blueprints for optimizing the way users create, access and use data and information.

The NFAIS Annual conference aims to help attendees collaborate on addressing the myriad challenges and opportunities presented by fast-moving changes in and the overall evolution of scholarly communication and information services. Registration for the NFAIS 2017 Annual Conference is open with Early Bird rates closing on January 9, 2017. In addition, the Conference Hotel’s limited block of rooms are available for special discounted rates through February 3, 2017.

About NFAIS (www.nfais.org):
The National Federation of Advanced Information Services ( NFAIS™) is a global, nonprofit, volunteer-powered membership organization that serves the information community - that is, all those who create, aggregate, organize, and otherwise provide ease of access to and effective navigation and use of authoritative, credible information. Member organizations represent a cross-section of content and technology providers, including database creators, publishers, libraries, host systems, information technology developers, content management providers and other related groups. They embody a true partnership of commercial, nonprofit and government organizations that embraces a common mission – to build the world's knowledge-base through enabling research and managing the flow of scholarly communication. NFAIS exists to promote the success of its members and for more than 50 years has provided a forum in which to address common interests through education and advocacy.